Spinal Muscular Atrophy Support UK is a national charity.SMASupportUK Logo

We support and empower those affected by Spinal Muscular Atrophy. We advocate for better services and raise public awareness in partnership with the health, social care and research communities.

Information and Support

We offer free confidential information, emotional support, practical advice and guidance to anyone affected by Spinal Muscular Atrophy who is living in the UK.


We have many ongoing research projects which we fund to ensure up-to-date articles and information on any new developments in the SMA research field.

Help Us

You can help in multiple ways through volunteering and fundraising. By choosing to fundraise for Spinal Muscular Atrophy Support UK, your generous gifts will help us provide essential services to all those affected by SMA, raise awareness of this rare condition, and fund research based projects to bring hope for the future.

Our Community

We provide a range of information and support to families and health professionals as well as promoting and supporting research. We employ a small staff and rely on a huge network of volunteers to assist us with our support and fundraising. We are governed by a dedicated Board of Trustees.

Click here, to visit our website.

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